2023 Walk for PKD Social Media Toolkit

We’re so excited that you’re joining us for the 2023 Walk for PKD! The Walk brings together our PKD communities to honor loved ones, foster a sense of community, and provide hope for a future without PKD. We’ve put together this toolkit to provide you with resources that will help you spread the word, raise PKD awareness, and boost your fundraising efforts—all through social media.

Hashtags

#WalkforPKD #EndPKD

Pro tip: Make your own hashtag with your team name,
ex: #AnnasWarriors #PKDWontBeatMe

Sample Posts for Individuals

Promote Walk Registration

Why do I walk for PKD? Because an estimated 600,000 Americans, including me and my family, are affected by polycystic kidney disease. Join us this fall as we walk side-by-side with a cure as our finish line! Register today at walkforpkd.org. #endPKD

Pro tip: This post is an excellent opportunity to use your own photo. Try using a past Walk photo or even a selfie!

I am a #PKDWarrior! Polycystic kidney disease is a chronic, genetic disease causing the uncontrolled growth of cysts in the kidney, often leading to kidney failure. There is no cure. Support me and my vision to #endPKD by registering today at walkforpkd.org. #WalkforPKD

Promote Fundraising for Your Local Walk

Promote Your Personal or Team Fundraising Page

Sample Posts for Community Volunteers

Promote Registration for Your Local Walk

Calling all PKD warriors! The San Antonio Walk for PKD is right around the corner, and we need your support to make it a success. Walk with us on DATE to improve the lives of everyone affected by this disease. Register today at Link to your walk webpage!

Pro Tip: Add your Walk information to the highlighted sections.

Lace up your sneakers and join us on DATE for the Chicago Walk for PKD! Together, we can make a difference in the lives of everyone impacted by polycystic kidney disease. Register today at Link to your walk webpage! #WalkforPKD #endPKD

Share your story

Sharing your personal story can be an effective way to build engagement and generate interest around your Walk and fundraising efforts. Try answering these questions:

• Why do you walk in the Walk for PKD?
• How has PKD affected you or your family’s/friend’s life?
• Why is it important for the PKD community to support one another?

Pro tip: This is a great opportunity to post a short video on TikTok, Reels, or Stories!

Examples

My first experience with the PKD Walk was eye opening. Having PKD, though I know it effects hundreds of thousands of people, always felt like a family thing. I had never met anyone outside of the family who had it. In the last couple of years, I became the last adult living with it in my family. It was awesome to find out about the resources available and meet people who are experiencing the same thing. Felt good to find there are people out there fighting for a cure! So happy I found this Walk and these people!

We loved walking in honor of our son, Theo, who has ARPKD. He was born in the very beginnings of Covid, and before we were connected with the PKD Foundation; we felt so isolated. Meeting others who understood what we were going through was so comforting. We’re very thankful to have this community as he grows — both to learn and to meet others experiencing the same things!

Fast Facts

• What is PKD? Polycystic kidney disease is a chronic, genetic disease causing the uncontrolled growth of cysts in the kidney, often leading to kidney failure. There is no cure.
• There are two types of PKD: autosomal dominant (ADPKD) and autosomal recessive (ARPKD). 
• ADPKD affects an estimated 600,000 Americans and 12.4 million people worldwide.
• ARPKD is a rare form of PKD that occurs in 1 in 25,000 children worldwide.
• 100% of funds raised from the #WalkforPKD go toward PKD research for more treatments and a cure.
• The Walk is our largest gathering of PKD communities, with thousands of PKD patients, family, friends, researchers, healthcare providers, and supporters.
• The Walk for PKD has raised over $33 million for PKD research.