What Your Fundraising Supports
At the PKD Foundation, our vision is to end PKD. Research is the key to making this a reality. Since 1982, we’ve proudly funded $36M in PKD research grants and fellowships while leveraging more than one billion dollars in government funding for PKD research.
Dollars directed to PKD research represent a stride toward understanding, treating, and ultimately curing PKD, offering hope and relief to millions worldwide.
Fundraising dollars from the Walk for PKD, have helped us by:
- Restoring funding when the Congressionally Directed Medical Research Programs funding was cut by 57% —from $1.5 billion to $650 million—in 2025.
- Supporting growth of our Centers of Excellence (COE) program, which now supports 81 COEs and Partner Clinics across the country, serving both pediatric and adult patients. In 2025, these clinics provided care to a total of 16,600 patients, 1,000 more than the previous year.
- Advancing research through our ADPKD Registry. Today, it has more than 3,600 participants and nearly 300 electronic health records. Through the new ADPKD Registry Researcher Portal, the scientific community has better access to de-identified, aggregated Registry data to help drive medical breakthroughs in PKD care.
Join us and help us move PKD research forward.
Why We Walk
Experience what it’s like to be part of a one-of-a-kind, coast to coast movement at this year’s Walk for PKD. Together, we walk to fund PKD research, raise awareness, build community, and improve the lives of those living with PKD.
Last year, fundraisers raised over $1.1M which helped us maintain our 20% increase in PKD Foundation funded research.
As we join for the largest gathering of people affected by PKD, we’re excited to celebrate why you walk. Watch this inspirational video to see why others in the PKD community are dedicated to the Walk for PKD.
Use the tools below to share why you walk.
Why do you walk for PKD?
I walk for